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Diagnosis of Adrenoleukodystrophy

Discover key insights into the diagnosis of adrenoleukodystrophy. Learn about screening tests, imaging, and genetic testing used for identification.

  • 05 Apr 2024
  • 2 min read
  • 104 views

Adrenoleukodystrophy (ALD) is a genetic disorder that damages the membrane covering nerve cells in the brain and spinal cord. It also affects the adrenal glands. The symptoms become apparent from age 4 to 10. It can be present in later ages also. The symptoms include loss of vision, learning disabilities, deafness, lack of coordination and balance, lack of appetite, progressive dementia, etc.

What is the Diagnosis of Adrenoleukodystrophy?

For the diagnosis of Adrenoleukodystrophy, the healthcare provider will review your medical history, symptoms, and also family history. A physical examination and certain tests are conducted to confirm the disease. The diagnostic tests include-

  • Blood tests - This will examine the levels of long-chain fatty acids (VLCFAs) in the bloodstream. High levels of VLCFAs indicate the possibility of ALD. Also, the working of adrenal glands will be examined through blood tests.
  • Genetic tests - Done to detect mutations that cause ALD.
  • MRI - The powerful radio waves of the MRI scan procedure create images of the brain. Through this, abnormalities in the brain including nerve damage can be detected. Doctors make use of several types of MRI to identify the problem.
  • Vision Screening - ALD diagnosis also includes vision screening, especially in males who do not show any symptoms related to
  • Skin Biopsy and fibroblast cell culture - A sample of skin will be examined to check for increased levels of VLCFA.

The infants will undergo newborn examination which includes the screening for ALD.

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Conclusion

In the general population, the estimated prevalence of ALD is 1 in 10,000 and 1 in 17,000 people. Symptoms are seen in early childhood when children lose the skills they had previously. It is better to start the treatment early as soon as the symptoms are detected. With a health insurance plan covering ALD, one can afford the treatment cost of this disease.

Disclaimer: The information provided in this blog is for educational and informational purposes only. It is not intended as a substitute for professional advice, diagnosis, or treatment. Please consult your general physician or another certified medical professional for any questions regarding a medical condition. Relying on any information provided in this blog is solely at your own risk, and ICICI Lombard is not responsible for any effects or consequences resulting from the use of the information shared.

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